It's the Struggls That Make Us Strong

Lately being sick has taken a emotional toll on me. It's a struggle that can seem endless at times. Brought on by medical mishap. Physically suffering from symptoms simply for too long, countless pills, side effects, implanted foreign objects in my body, scars, doctors appointment, finaces, and the management that comes with it all. It can really make you feel hopeless and alone. It will test your greatest strengths of what you can truly bare. But you don't have to do it alone. I can say God is there and knows your situation. He also knows your strengths and what we are capable of handling. So he will push us to our greatest potential. Sometimes that means tough love. Tests and trials. But we are NEVER alone.
    As I prayed last night feeling hopeless and alone, I asked for comfort. For knowledge that I wasn't alone in this battle. Though I felt very alone. Shortly after my prayer, I would no longer feel this way for long. Hanging out of a scrapbook full if scripture quotes,that was not yet glued in read, "have I not commanded thee? Be strong and of a good courage. Be not afraid, nor dismayed: for the Lord thy God is with thee withsoever thou goest." Joshua 1:9. This is true, my heavenly father was speaking clearly to me. So today I put my faith first and stand stronger and braver than before-Chelle

POTS Control

At IV therapy getting my saline infusion, using my port!  Wearing my new super comfy and cute compression socks!!! Getting through my POTS one day at a time!! -Chelle
Here's The compression socks link: http://www.celestestein.com/

Where to get cute compression socks

I just got my new cute Celeste stein therapeutic compression socks! I love them! If you have POTS I highly suggest these stylish things!!! They are very breathable. I ordered them off Amazon. But here's their direct link: http://www.celestestein.com/

Cold feet no more-Chelle

Chopp, Chopped!

I chopped, Chopped my hair off this weekend... or I should say my sister chopped,Chopped my hair off. It was time for a change. My port is pretty much healed. In fact I am getting a bag of saline right as I type this! I am doing better! Yayy.... gj feeding tube is very painful still and bleeding inside the tummy.

I am so blessed to have such a sweet and talented siste, who can color and cut my hair at home. Otherwise I truly don't think it would be an option for me to get my hair done at a salon.she even lets me elevate my legs in her cupboard.-Chelle

Healing

I have been recovering and coping with my new or not so new lifestyle. My heart is going through phases of this isn't fair, this can't (although it already has) be happening... to I can do this, finding heavenly peace,to finding how I do help others daily. Even with my disabilities...with my thick illness. Yes, I am scared right now. Not because anything's particularly"worse" I have what I have. It seems and wanes. But because being sick is hard and scary. I want to quit but I cannot... it's not an option.ever. so trekking forward I will, with hope in my heart for a brighter day. I am sad and depressed at times. Ask anyone who is ill all the time... they will be lying if they say it never happens. We have to grieve it. But I know through my heavenly father I can find peace. That was something strong in my priest hood blessing last night. I know heavenly father knows me,and my sufferings. He also knows the bigger picture I don't. I trust him with it. Just put your faith in God and he will bless you. That's something I knew but have relearned this past week.

I had to share my funny feeding tube dilemmas. The problem: the bottom of the tube is too weighted and pulls really hard like an anchor. Causing pain. I tape it and it just falls off. Any ways my fix: who needs a neck pillow for their neck?? Me I use it for a personal tube holder haha

The Life of a Tubie

Friday morning at 8 in the morning my port was placed. I did have a reaction from the antibiotics. I was literally red from head to toe and swollen and itchy!!

Then my feeding tube clogged for no reason... I ended up in the hospital that night and I had a new tube put in.I was wide awake through the whole thing! radiology. I am just glad to be back home resting!!! I hope all the fathers had a happy Father's Day!!!-chelle

pass

Today has been a definite dysautonomia day already... I woke up in the middle of the night in a puddle of sweat, everything burning, a bad headache,Tummy ache, nausea, cramping, I felt awful. I unhooked my feeds and fell back to sleep. Then this morning on dragged myself out of bed and dropped my handicapped card paper work to my doctor... because heat intolerance mostly. But here's why I need it just walking into the Dr handing the receptionist a paper walking back to car. Then getting dropped off at the front entrance at hospital.... for iv therapy. I got to iv therapy sat down, said a small prayer then I just passed out sitting down! I fell sideways and was hanging off the side of the chair nearly upside down until the nurse got me aware.I remember feeling funny before kinda floaty. I think my blood pressure was low. But I am hooked up to fluids now! -Chelle