A Mess, My 1st ambulance ride

There has been a lot of defeated & scared tears this week. I turned to the only one who could help my through the difficult trial Heavenly Father. (This Mormon message- mhttps://m.youtube.com/watch?v=xdN8rfwW3SI  is such a beautiful message by president Henry B. Eyring for hard times. It got me through my sorrowful week..) It's no secret I've struggled this year greatly with receiving proper healthcare. Some of my specialists have failed me, intentional or not. I have not been able to get help. I've been deemed "too complex" for care at hospitals and specialists across the state. Few doctors, that were left on my team,  have been fighting for me. They truly have worked hard and have been the reason I kept going. But the truth of the matter is, I am a complex patient with many health issues. This has led me to literally be tossed around unlike the average person. No doctors want to deal with my complexities. In other words I'm too sick to get care. I also have a Complicated CFS leak that's been reeking havoc on my poor body for the past year. It's been scary. I've thought I was going to die from my scary very real symptoms. When I lost caregivers this year after I fell out of remission, my heart broke. I have been feeling stuck in the middle for a year. Here I had built this beautiful team of doctors and I was doing pretty well. I worked diligently and hard. And I know the Lord is the reason for this. Today a ray of hope came through the doors.

I was ambulanced to Mayo hospital. (You have to roll with it and laugh because crying gives us headaches.

I sent this picture to my immediate family and they laughed. My poor sister thought that the ambulance drivers for me a Powerade slush. But in reality husband did. I haven't eaten really in days not even formula. But tummy is getting helped.)

 I was discharged just a few days ago after working on my CFS leak. I wanted to be on less medications and get well Vs just keep waiting. But that specific doctor was awful to me and deemed me a pain seeker even though I never asked for them. Instead of listening to me instead of assuming, he would have known.

I wanted to get off my meds and get the tests necessary to get me the serious help I need. I came here to be on less

Medications. This doctor actually harmed me by poor actions on his behalf. Those have effected me greatly but I won't go into detail. I am sick, stomach paralysis, POTS, Sjogrens. All of my issues. They initially thought I had a bowel obstruction but I have a severe blockage, & they  found a cyst on my pancreas, this they will be looking into. The issue is the leak needs a very specialized specialist to treat now. So it's currently being review by a special neuro surgeon the "guru" of the country for CFS leaks-treatment now. I pray he can help me heal this so I too can move forwards in life. But today a team of doctors came into my hospital room. They reviews my case and they had a plan! A plan! It was wonderful! They want to get me into pain management, so I can come off some medications. And hopefully find better management of pain! I will see GI, a few Neuro-Specialty, & Rhuematology. They have all the specialists I need here working together on my case as a whole instead of tossing me from one to the other in confusions. This is a team working on me with each other making me hopefully the best care package my broken down body needs! I feel this is a start. It's what I've been begging for all year! I informed them I have been in remission before not too long ago and I even had my feeding tube out for a short time. (When I fell out of remission is when my CFS leak began.) That really lit the fire under them all! So hopefully my GI system heals and quits flaring. And the rest of the puzzles fall into place. There is a lot to be done. I'm sure there will be ups and downs along the way. But I have a new journey hopefully a healing journey. God has plans for me and being sick is hard. But I am truly blessed as a daughter of a Heavenly Father. He told me that I'd be okay again. My grandma told me "not to worry." And I didn't know what it meant but it's ever so clear now. Please, never loose hope in hard circumstances because hope is the tool to have faith. There is so much love in god's plans for us. Keep climbing those mountains. Let your heart breaks be beautiful and know the savior will always be with you. -Chelle