Saturday, December 22, 2018

Home.No worries.

I've been home for a few days now and the anxiety that I'm going back to the hospital for the millionth time is going away. It's been nice to be simply home with my Husband. I really missed my hound dog while I was gone and I've been enjoying time with Wreckskies as well. I love my half decorated Christmas tree!! (It matches my ring.) We've gotten to curl up on the couch and watch Christmas movies together. 
And I drink carnation breakfast essentials for hot cocoa. (It's actually super good, and adds some vitamins to my world.) I love love love my glass mugs and my new rose gold silverware (or goldware? I'm not sure. Haha) 
I do miss the warm weather of course! It is much colder here but I'm starting to adjust. We have a blanket war in the house currently of which blanket is whose... There is a particular furry one that is the number one blanket to be faught over and we just got it. I have been worried my stomach has been super slow and I've had to really work with it lately. I am hoping I am on the right path! But my motility is definitely worse currently. I'm still awaiting to hear from the guru Neurosurgeon in LA. I have still not received any follow up care from my hospitalization. (As I was promised I would be seen in hospital. They then promised I would see all my specialists the next week. Promises. Promises. They also told me I would be cured essentially if I quit all my medications. Hah! I told them I wished.)  Welp, I've seen no one and can't even appoint a few. I see a GI after Christmas for my cyst they found on my pancreas. My goal is to survive the CFS chaos and to work the GI system to be back on track again. The other goal it to get my nutrition in well to make me good and strong. We forget easily what nutrition really can do for us. I saw that when I didn't eat last week. The body  thrives and runs on fuel. If you want to get better that's a place to start. Hope is never lost. I just keep looking forward and saying my prayers. Something Grandma said to me before she passed away, was "not to worry". I remember joking after and telling me mom, "oh no! If she says not to worry what storm/trial is in my path next?" A few months later the scary symptoms scared us. These issues still worry me honestly, but I think of what grandma told me, "Not to worry" -Chelle

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