Here.

I was discharged yesterday from the hospital. They promised me the moon and uh well didn't exactly come through. The specialists never came to see me as planned. I have to wait now out patient and go to clinic. I was told they had to get me in this next week at the latest... Only 1 of the specialists have, and one other is two weeks out. I am doing better but oh so bad. I can't eat anything. I am proud of myself. I have started dripping my feeds (formula and water) at 10ml per hour. Last night it worked so fingers crossed. That's EXTREMELY low. (I am supposed to be over 25 to leave a hospital.) I think that's what this week is going to be is just building slower then a turtle speed. I have never been so sick in my life. My head still spins a little when I think about how I got this sick. My spirit is are getting higher just being out of the hospital. However I almost had to back hours after being released. So glad I didn't! I'm so weak. I haven't eaten in a week. I've had IVS with electrolytes and now dripping formula to not get low blood sugars. I may need Iv intervention for hydration but hopefully not! Dysautonomia is so mean but I'm stronger! That's where we are. I'm very grateful for our savior and his love for us. When I am hurting I think of him and how much pin he endured for me. He knows the pain we all feel. I am so thankful do the little blessings in life. Eating, breathing, going to the bathroom, walking, Seeing, being able to do the littlest of things are such huge blessings! We easily take for granted daily the littlest details in our lives that are truly so big! -Chelle