Wedding Photos and a CFS Leak

Enjoying my sunset view of the mountains as I sit in IV therapy. Well, it seems I'm being a complex spinal fluid leaker. I just saw a new neurological specialist who thinks we need a better picture of my spine and head. She works on the team whom I've been seeing since my hospitalization in August. This being said, I will have several different types and new MRIs this week. We need to determine  where the leak is exactly. Since we have patched my spine previously new images are needed to show the current status. However, right now it very reasonably seems that I have a spinal fluid leak. We also will be doing a slower version of the Myleogram to detect any slow leaks. If nothing shows on these tests, they will be sending me out of state to Cedars-Sinai, to a specialists in spinal leaking for further care. They are the gurus of these spinal issues and I need the added complexity care. Meanwhile they will put me on IV medications to maintain the pain and severe neurological symptoms. The doctor was very respectful and nice. I felt she is trying her best to help me. I have not been to this particular doctor so she was new. It was a nervous morning coming to see a new doctor in such a delicate situation. The song "Small Enough" by Mindy Gledhill has been playing in my head since We said our prayers this morning. It's been a huge  comfort to feel Heaven by my side. I have been to this large facility years ago and it failed me. I understand those where entirely different doctors in the past and that's not the facility as a whole. They seem to now continue to take me in under their wings. Now to wait and see. We pray the lord will let us see what we need to see and take us where we need to go to get me back on my feet! I honestly do not feel I have fallen out of remission this past year. I feel it's all related to the spinal leaks. CFS leaks are more common in POTS patients and it can mimic symptoms of POTS. So that gives my heart some hope that I can be well again if God's will. On the bright side while awaiting between appointments, our wedding photographer (We were lucky to have had the pleasure of  Maite Photoraphy at our wedding day to capture our big day! She is truly amazing!)  sent us our beautiful wedding moments. Today marks our one month wedding anniversary and with the day being a rough medical day... It was a good day to get a good suprise amongst all the chaos! It lifted my soul. Just as my husband and bestest friend lifts my soul daily.

I truly had the perfect wedding day to the perfect man!💕 - Chelle