Hospital admitted a mistake?

Back in the hospital... They say I have a CFS leak but they aren't sure where it is located. They are going to be doing  imaging today. Once we get these results, they can do something to fix it. If they do not find anything visible to their eyes... That means it needs to be reviewed by a specialized specialist of spinal leaks. They will send me to Cedars Sinai, a place that specializes in these Spinal fluid leaks. I am a complex case. My leak is a compex leak. Last night was hard and bumpy. They didn't even start me on my at home medicines until one of my old docs from a previous stay came in. So I had a horrific night with poor pain/symptom management. (Unfortunately, I was doing better at home taking care of myself.) I pray they do not let things so far out of control again. It was a result of faulty healthcare system.  I sat in the main hospital waiting room that's fully under construction in a chair with a leaking spine for hours yesterday. It was miserable. The IV therapy wrongfully kicked me out for being admitted. They were supposed to treat me there while they got me a bed set up upstairs. This way I would have been in control of symptoms. I also would have been laying down as I am supposed to be. But the nurse wouldn't let me even with me telling her that the doctors & hospital's nurse called and told me to remain under the Iv therapy treatments. I'm supposed to be on strict best rest. Being upright makes me significantly worse because the spinal fluid in my head is low causing the inter cranial pressure and symptoms. Noise and lights are a no-go as well...

By the time they got me upstairs I was SO miserably sick.  My poor tummy is flared with Gastroparesis. That's not helping things. It is a heavy burden to be here honestly, but I have to do this. I've been miserably sick for a long time now. The neurological symptoms are severe and only worsening. It's like I had a mix of a stroke and seizures. Everyone, (even the nurses) keep telling my I have a bad "headache" or "migraine". I have a hole in my dura in the spine where the spinal fluid is actually leaking into my body out of my spine. When this happens we get low spinal pressure in the head. The brain is protected by this fluid so that it doesn't bump into things. It holds the brain up in the skull. So my brain is seeping down into my spine and into other parts of my face. This is beating my brain up and making my whole body mad and do wacky things. Such as stroke face. So yes I do have a headache that's worst then any migraine I could ever experience. Spinal fluid leaks are  so much more then that! All the neurological symptoms from this are nightmarish. Today My poor Husband has dealt with my melt downs of tears in the parking lots from Frustrations, and poor care. He has soothed my broken heart that my body ravished. He stood by me and I'm so very grateful to be loved by someone so good.  Originally, I was to do these tests and IV medications out patient. I would come have IV medications with fluids. And get my testing done within the next 3 days. So doctors can make a plan of what to do now... Treat leak here? Or just go to Cedars? And obviously finding the best and safest approach. 

It's like running a marathon to get well

And I can't get the basic of care that an average person would get. I guess I have bad luck. My sweet Husband is calm and

Always lifts these heavy moods.

He heals my Heart during these trialing times of being so sick. He makes me giggle when I don't want to.

Which is such a Big thing! 

He doesn't leave my side.

He slept by my bed the whole night. I feel bad we are here going through this. I am very blessed to have such a sweethearted, Compassionate man in my Life. He doesn't just stand by me he lifts me up -Chelle