It is early today in the Germann household. I've been up since 5 am. My new normal. The only problem... I'm not able to sleep until after midnight. A spoonie needs her sleep. Every morning on the dot, I wake at 5 am... i am currently waiting on my home health nurse to arrive here. Today I have home health IVIG. I find it ironic I have an infusion once a week that make me sick for a minimum of a day, to feel better. Well actually, for me it is to keep me alive. Not because of my POTS, or several other conditions, it's that lovely old mean Autoimmune Encephalitis. My steroid weight is slowly coming off and my hair is growing back in. BROWN! I think I'm having an identity crisis. So I have some long thin-brittle red hair and baby patches of brown hair. Its bananas! (Something that has helped my steroid weight come off is lymphatic drainage... and I have been using the Noblerex Platium machine. It also helps healing and strengthens muscles. I personally love it. It has helped me gain some leg muscles again.)
This morning I have been reflecting on my past year.... tomorrow is my 1 year wedding anniversary!
It has been a year of trials, great suffering, heartaches, yet a year full of limited love. My mother lost her job to take care of me when I was dying and has not found one since despite great efforts. She feels bad but all I see is a brave, beautiful, strong woman who so selflessly gave up her stability for her grown daughter. I have the best mother on this planet. Idk why some trials happen, but I know God is watching over us. He will bless her for her blessings she gave to me. I do not know a better person in this world then my momma. I really don't.
My dearhushand has stood besides me continously. He could have walked away or deemed me crazy as some negligent doctors did. He could have ran from the chaos and pain. But he merely stood besides me and held my hand. Even when I was fat from the extreme doses of steroids that are the only reason I write this today. It is crazy how life works. Things happen beyond our control and all we can do is our best and learn the lessons within the storms of our personal trials. I believe God helped us this year. Getting married was such a big decision. It meant losing heslthcare and financial stability of my disability. It meant choosing the harder right then the easier left. So of course Satan had to play his game and try to ruin the goodness. My first year of marriage is a true testimony of walking blindly in faith and choosing the right. And that choosing the right won't always make everything easy or go "right". It simply means trusting in our heavenly father and following his teachings. But I know we will be blessed if we have not yet been already. I value and cherish my hard first year of marriage because though I wanted to die and all but did.... the blessings where innumerable even if it did not always seem that way. I have such a good husband and I am ready for year number 2 tomorrow. A brand new start. Hopefully with health and little trial. Xo -Chelle
We love halloween! We've watched the classic movies. I didn't get any trickery treated. Ap my heart hurt a little lol but we had a fun might together after Husband got off work! After all we went to a church halloween dance for our first date...
I was a scare crow
We were too lazy to carve our pumpkins so we switched to our artistic painting ablilities.
