Well I didn't really have nutrition issues (GO ME!! 🙌) turned out I was/am in an autoimmune flare up. I have multiple autoimmune conditions. (Meaning my immune system attacks my body. Commonly known of autoimmune diseases would be, "Lupus" or "Rheumatoid Arthritis". Just to name a few for examples.) So, Dysautonomia International released in July that they were having good results with IVIG therapy in POTS patients that also had Sjögren's Syndrome. I have both... So Neurology cleared me and we are starting IVIG therapy. I am a candidate. Though we don't know if it will help The Dysautonomia... It has been sent through Home Heath and I will infuse through my port. Rheumatology felt this treatment will help ALL my autoimmune conditions across the board and make me feel better. (So ya gotta help something! Fingers crossed) There are no guarantees obviously but we have to try! For now the time being... since my Sjögren's seems so severe, they are putting me back on my old Immuno suppression pills, Imuran. They worked before and we only stoped them because some random lazy hospitalist didn't know what to do with me when I had unresolved fevers for over a month, with no conclusion as to why I fevered. (Rheumatologist was livid they never called him in while I was at his hospital and several more hospitals later for that matter. I simply was "crazy" yes they tried sticking me in a psych ward because I had fevers that didn't have answers. So we missed valuable testing time then and basically my doctors decided to see what happened with stopping my Immuno suppression and it's biting me in the butt now. (A year later) My body has had time to attack itself again.) During Rheumatology appointment I was complaining my lungs felt dry and found out my "medication side effects" (making me feel like I was suffocating.) is actually a symptom of Sjögren's. This is because my lungs are dry. Yes dry. I'm okay but it's not comfortable for sure. Luckily it varies up and down on severity. So I am back on those "poison pills" as I have always called them for now. Right as flu season hits. That makes me SO nervous. Because now I am medically fragile. My immune system is being wiped out so it doesn't attack my body but that also means I will get sick at the drop of the hat with any virus. I already get secondary infections from steroids that I use. To top that off any sort of bodily trauma especially a virus can set my Dysatuonomia off and make me severely worse. Even permanently. So please, I am begging if you are sick or have been around someone sick (contagious or possibly) no offense but STAY AWAY from me! It's serious. But I will choose faith. And just keep trying. (I have hopes the IVIG once started works well and then I can go off Immuno suppression medication. We will see.) I also had a lovely skin cancer removed last week that I never would have guessed! I went in for one thing and left with another (my luck) So get your skin checks even in your twenties because it actually does happen! Not just to medically interesting folks like me... And I am fortunate and blessed I went in and it was caught. Now I can keep an eye on things. It's melanoma related. But not a melanoma. And I am now high risk of developing melanoma in the future. It is called a complex nevus. But luckily I can keep an eye on things and just take good care of everything! That's my lovely health update. I have some exciting health improvement news I hope to share at the end of the week but I think I'll keep it a secret for today! One day at a time. Literally Lovies -Chelle
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