love Life, Love yourself

I have had a lovely past week! I feel pretty well considering! I am simply enjoying my time of freeness and happiness! Thankful for my hard times but feeling so blessed to be able to enjoy the simple good times to the extent I get too! Being sick is a blessing in its own little ways! Live life, love life, even when it is imperfectly perfect and remember to love yourself xo-chelle 

Herbie

A little over a week ago I did something very exciting!!! I bought my first car (well I have had two vehicles thy were mine but I was in high school) this was my first all grown up car lol my herbie is so much fun!! Love my vw! -Chellle

Gastroparesis & feeling Very Hungry

I have gastroparesis. Unfortunately all I have been able to find online when searching, starving and gastroparesis or hungry with gastroparesis...and many more similar searches. I AM STARVING ALL DAY EVERYDAY! Hungry! Hungry! Hungry! It's consuming me, it's all I think about and I get nutrition through my feeding tube so I am not literally in trouble starving... It's still miserable! I have also found others with gastroparesis go through this, and we end up eating and making ourselves sick because of it. I don't know what to do about this! I would appreciate any advice and I will share it! -Hungry Chelle.                           I am grateful for Iv food but it's getting old!

Don't be Afraid to Leave your heart on your sleeve

Most the time in the chronically ill community we put our game faces on, brush it off the best we can, and say ,"I am okay!" With big smiles but what I think I should say some times is, " I am NOT okay." "I am struggling to live with my illnesses" " I get sad too." I don't mean to say we should run around airing all of our dirty laundy to everyone we know... but to wear our hearts on our sleeves to let others in. Especially those with a deeper understanding of chronic pain. Like our spoonie friends! Opening up can open doors for a fellow ill friend to feel not so alone in the war and it will bounce right back to you and you will see you aren't alone with your illness struggles, as well. We all go through dark times. Where I feel alone the most is in my pain, the mental pain but I have come to find most my sickly friends grieve and go through similar things I do. Sometimes letting others see our open hearts (I believe) will bring good things to come. Pray earnestly in dark times for you are never alone. God is there our savior Jesus Christ is there!! If you ever are feeling alone or hopeless please feel free to message me anytime! We can break down barriers of not understanding and hopefully reach a new level of compassion towards others and ourselves. A song by lady A called never alone goes "may you win but stay humble Smile more than grumble and know when you stumble you're never alone "Your friend-Chelle

Something Good

I am currently on my porch being eaten alive by bugs! But it's a wonderful evening out! Mr.Wrecker and I are taking advantage of it!! Today I submitted my first few images to the Dysautonomia Project. I am volunteering to make awareness photos about Dysautonomia. I can honestly say it not only feels good inside to be helping a great and personal cause, but something inside me feels whole again. Like I have a use again. My heart is happy.When you don't have something to do every day...or somewhere to go you loose something. But hopefully I am on the path to patch that up! Be you in whatever you do!-Chelle
To learn more about the Dysautonomia Project: https://thedysautonomiaproject.org/

Blanket Hoarder

I bought another blanket! I have a problem. It is official!! Some women buy shoes not me I collect blankets! Hope your having a good healthy day and if not stay strong, You got this!!!-Chelle 

Double Tubie Shot

I know I haven't posted a double Tubie photo yet. showing both my g j tube and port accessed. I don't post these pictures for immodestly because modesty is important but to raise awareness about what I deal with on a daily basis. (And others who are tube reliant) My struggles with my conditions! I think it needs to be an open road for patients not to be judged by our tubes. These tubes in me, keep me alive! I wouldn't be here with out them! They make me safe and give my body the fuel it needs. I am proud of these tubes they are a badge of courage. Sure sometimes I miss the old non tube version of me when I ate regular and people didn't stare or act funny around me or turn their heads in discust simply from not having a true understanding of a feeding tube. But humans are humans and it's ok if you don't understand. You probably have not dealt with a tube. But I promise they aren't as scary as they seem or look. Stay beautiful and strong ! Xo-chelle