Remember when...

Whoa did I have a hard time sleeping at night. since I have been sick I pretty much either sleep way too much or I can't sleep. So a slow start this morning. This picture is of me back in high school in the good ole cheer days. Yes I was varsity cheer captain my senior year. despite my body fighting me every second of the day. This being said my senior year of high school was not as glamorous as pictures may look. for instance in this picture I did not know it but I had the following: Sjogren's syndrome, Lichen Planus, pelvic floor tension myalgia, and panic disorder. Only the good lord knows how I got through cheer. He had to help me have that deep determination not to quit because believe me did I have several days where it was just too much. I did it though and am so glad I did! No matter how hard it was on me. To cheer I literally had to go to school and barley get through that...go to practice and kill myself for that... go straight home and go to bed. Then do my homework in classes. Then wake up do it again. I didn't even do anything on the weekends but stay home and sleep life was a night mare to me and I still don't know how I did these things, which such a broken body! My doctors are even stumped haha. Now today there is no way I could do any such thing...that makes me even more grateful I did it while I still could. Plus I got to meet Tony G, if you don't know who that is he is a famous choreographer. He did all the choreography for the bring it on movies... I met him when my team got invited to preform at the holiday bowl... here are a few cheer pictures.

                         Below: the team and holiday bowl 2010 half time show dance choreographers.

                                               Below: the team and Tony G.

Good times!

& it snowed!

  If you look at my hair and scarf you can see snowflakes :) It didn't last long but it did snow! A beautiful gift from god above <3

cozy day super simple yummy crock pot meal

So far I feel pretty decent today (a rare occasion) so I am  going to do something I usually don't; Is it a cold winter day where you live? This dinner will warm you right up (no it isn't spicy) just a super home cooked meal.I am going to eat this super easy, yummy, cozy meal tonight. The best part I made it this morning so dinner tonight will be a breeze to prepare. Oh wait it was a breeze to prepare this morning! I'm sure a lot of you have seen this meal before but if you haven't give it a try it is super good:)

First you need to get you crock pot out!

                                               Step 2: get out  2 cans of this yummy soup.

                                         step 3: cook up a package of pork chops yummy!
                                               (you can substitute chicken if wanted)
                                      I seasoned with a little bit of garlic powder and ground sage.

After you cook up your pork chops put a layer of the cream of mushroom soup on the bottom of your crock pot, Then add your pork chops. Then add the 2nd can of soup and about a half can of water. Then set crock pot to LOW & when dinnertime comes it will be waiting for you! I cook up some rice and a can of green beans for my sides. Yummy!

 

P.S. if you need to clean up...have you used or seen this scent of dawn?? It smells amazing!

My most favorite song ever!

This very song is playing on pandora as I write this... had to share...This song is simply my favorite one ever! By Hilary Weeks, this is the first song I ever heard from her & I have been addicted to her beautiful music since. I came across it a long time ago. I still Love, Love, Love it! Rings close to my own heart<3 ENJOY! Hope it brings you the peace it brought to me:) Like I always say trials in life are tough but they do bring the biggest blessings!

Come what may & love it

This is my favorite quote ever. That hangs on my wall to be seen everyday. Love the good and Love the bad, for their is goodness in everything <3

I'm not going to lie, today started out rough...the life of a sick person...

This dog makes me smile BEWARE this is what chronically ill me looks like today ;)

Today I woke up to my phone ringing, a phone call from this new doctor I am seeing. They wanted MORE records and my fax I sent them didn't work out so hot they only got parts.(you see my mom is a dental assistant and did it at her work. Bless her heart I know she tried her hardest technology just isn't her thing)THANKS MOM for helping me:) So then she (the new doc's receptionist) continues about how my primary care doctor put on the referral sjogren's syndrome. My primary care messed up the referral. You see there is a problem with that and this is what is driving me nuts...I have a hundred million undiagnosed symptoms and that is the main reason I am seeing thing new doctor. That and the fact that all my other specialist have quit me (Yes, doctors can tell you they do not know and tell you not to come back) and others have treated me awfully obviously leading to me no longer seeing them. I have seen countless doctors and still no answers to some scary symptoms. So I argued with the lady on the phone to the new rheumatologist saying, "my primary care doctor really wants me to get diagnosed, she thinks what is wrong is some sort autoimmune disease,  as well as treat my sjogren's." The receptionist replied, "WE are a rheumatology clinic, you are seeing a rheumatologist. We can ONLY treat autoimmune diseases So just your sjogren's is all we can do." I also told her I had Lichen Planus (an autoimmune disease) " WE only treat autoimmune diseases." She replied...I wish someone could make these endless arguments disappear. I did call my primary care doctor and left a message explaining because of her referral that only says sjogren's syndrome, I can not be treated for anything else could she please send a note explaining the situation. I hope this is straightened  out before my appointment. Wish me luck :(  I REALLY  need a diagnosis so I can get proper medical help & get back to life. I don't feel very cheery today but I will be strong and try to choose to be happy even with my frustrations starting the second I opened my eyes.

I didn't want to post this but it is a fraction of what a chronically ill person goes through & I know if someone is out there reading this who is chronically ill, they too will understand. I hope this makes that person feel less lonely in this battle of health. Keep fighting if you don't fight for yourself who will? good luck to you may you have a good day and life long health:)

As I posted the picture above, I came across this little jem. One of the beautiful flowers from my B-day. I had this wonderful feeling come over me that my father in heaven is with me and everything will work out. & it will <3

IF you or someone you know is chronically ill, I have come across health keep... It's like an online support group that u can post any questions about your health, diseases, concern ect. & it is all 100% confidential you have like a name and you get to choose it so it doesn't have to be your name or your full name it could be something like coolgirl. (just an example) I think it's super neat check it out:https://www.healthkeep.com/
No one is paying me or telling me to share these things that I have shared!! These are really things I have come across and think are neat myself & want to share with you!!

I guess it snowed this weekend ;) & a LOL from me!

 This is my HAHA over the weekend I wore this pretty wool coat that I have had for over  2 years now and I wear... I took it off and I still have the extra button hanging inside lol 2 years &I never even knew!!

Tis is the amount of snow we got over the weekend. Not much huh? I am unsure if it really counts as a WE got snow! but I will keep hoping for more...I apologize if where you live it is snowing so much and you are tired of it:) you can mail it to me. You see as I posted Friday, we normally get snow by now and this is all we have gotten this winter yikes pray Arizona get some moisture so we don't burn up this summer!