Wanna Vote for me?? facebookers??

This is the picture I entered into the contest. #DysautonomiaAwareness

If you are a Facebooker... I have entered a photo contest through Facebook it will end Friday the 17th, until then you can go to this link (if you are a facebooker) and be sure to LIKE & SHARE it! it is the same picture as the back ground of my blog this month I  am trying to raise awareness for Dysautonomia. I too suffer from dysautonomia. Just having a little fun with this photo competition :) https://www.facebook.com/DysautonomiaFoundation/photos/a.304948549694407.1073741848.139719442883986/306165126239416/?type=1&theater

if you would like to VOTE go to Dysautonomia Foundation Facebook page.https://www.facebook.com/DysautonomiaFoundation?fref=photo
(if on a computer) Directions:to vote go to Dysautonomia Foundation Face book page and on the left side click "dysautonomia photo contest". then when that page comes up view the photos click the vote button on my photo and it will vote 

(if on tablet or phone) Directions: 1. go to Dysautonomia Foundation 2. Go down there news feed 3. under my photo is a link "join our photo challenge", click it 4. at top of that right of that page it says vote click vote then scroll down and my photo will be in the list of photos. click vote on my photo.

ALSO WHILE YOU ARE THERE BE SURE TO CHECK THEM OUT AND LEARN MORE ABOUT DYSAUTONOMIA!!!!!!!!!!!!! #dysautonomiaAwareness

Yesterday

Yesterday was rough to say the least. I started to write this post and then decided I needed to sleep. This morning when I got onto my laptop I read the wrods, "Today was quiet the day." it truly was rough waking up at 5 in the morning, to make it to my 8 A.M. appointment with the dietician. I am now on a liquid diet at least for the next few weeks. I have to get 1300-1600 calories a day. eat low fat and low fiber foods only and 54-65g of protein a day. (plus 10,000mg sodium for my POTS) The dietician put me on a severe Gastroparesis diet. She also said if I could not do this I'd end up with a  feeding tube. YIKES! I came to find out later that day from my Gastroenterologist that, that was not true. My tummy is not working up to speed it is very slow. And my Small bowel is really slow. This is all caused from my dysautonomia. now I thought and still keep finding some very reliable information that slowed motility and precisely if you have a gastric emptying test and at 4 hours your test showed 10% of the meal left in the stomach, then you have gastroparesis. . . I tested at 4 hours 15% was left in my stomach so I am very confused because my gastroenterologist said I do not have Gastroparesis. lots of headaches yesterday and confusion. I'm still very confused. Last night I layed it all on the table after a long upsetting day and I prayed to My Father in Heaven and just really gave him all my problems and worries and frustrations. I was very blessed last night to have my burden carried he simply let me relax, he gave me peace. He didn't take my problems away but he did in fact make the burden much easier to carry. Pray is important. No matter how you are feeling the Lord wants to hear from you. He wants to be there for you always. I hope you all are having a lovely day, lots of love-Chelle

A Simple Tuesday.

Wasn't Conference Great!!

Yesterday reality hit and I felt sad all day...  Today I felt sad because what I used to do when I was sad or anything was bake. It was therapeutic for me! Now that I can barley eat... and with how sickly I have been baking is HARD. REALLY HARD! Today though I was determined to bring back a piece of myself. I was looking up recipes online that are okay for me to eat. I had about 1/4 of a pediasure and sure enough I threw it up. That did put a kink in my plan and I was sad once again. So I rested, recharged, & got my Jackie Chan on! I did the task of baking and I did very much enjoy it!! <3 and I felt alive all over again!
These "muffins" are bland and I mean they have no taste to them a little bit like cardboard. but I am still happy! my new diet is going to be a challenge and I will learn more this Friday!

Friday! Just One Day Away!

Are you ready for Conference tomorrow??!! I AM!!

today in IV therapy figured I would make some more Awareness for dysautonomia!

More in Depth.

So, I just finished my last blog post and I just have such a happy heart and I recently posted I was down and struggling with the realities of being so chronically ill...I wanted to touch on this subject more clearly. I have been undergoing treatments and not getting a lot of help or relief. I just last week had a gastric emptying study to see if  my stomach is paralyzed. I have been vomiting about daily since early August. lots of things going on. In the mist of all this I fell into a low. I didn't feel like I had any value anymore. it was as if every treatment failed every symptom chiseled away at me and I felt I had nothing left but sick. I was sick. Michelle was gone. I did not know what to do. I felt angry and crabby (I won't lie) aside from being constantly afraid of everything and sad. Now I do realize this is part of the grieving process I am going through upon these very life altering diagnoses...and it's okay. I started however to quit practice the use of my tools in life. I didn't read my scriptures nightly and I hardened my heart a little bit (not a proud thing to admit) but I did do one thing... I continued to pray. I felt empty inside and lost. I felt alone. One thing I did know during this time... God was there and Jesus Christ was there for me too as they always are and always have been! I knew if I continued praying everything would be okay in some way. That I could feel in my broken heart. I was right. through the high's and Lows of this lengthy process I still am going through it was like someone turned on my light switch. My prayers were being answered I just wasn't paying full attention. I listened to the general Women's meeting last weekend. I was in a low and I listened anyways by the end of it I  found myself writing down, "I am eating my vegetables." As Elder Holland spoke on life and sometimes we just have to grit down and eat our vegetables...that is where I am at in my life I am simply "Eating my vegetables." I ended up putting that note on my dresser where I stare at it as I wake up in the morning and when going to sleep at night. It helps keep me on track. and I know I will not be forever eating my vegetables and there will  be better days ahead. Also the talk of our bodies being temples and how temples light the darkness and bring forth goodness... I have pondered that all week about how I am a temple and I need to set a Christ like example to the world. Not just because "I should" but because I needed to! When I started to practice my Christ like examples. I caught myself smiling at others more and being more polite, more reverent, I started thinking of others, and I found myself being filled with happiness. It has literally led to a spark inside of me that  I feel glows! I am so blessed and I know it, my heavenly father is so knowledgeable of what I am encountering and going through and how I feel and even when I am a "little brat" and throwing my fits or feeling completely sad and worthless he is there with me and he understands all my negative emotions. I feel like the talks I have listened to were just for me. He is there and he loves you no matter what! You can come unto him, lean on him, and  repent... and he is there with the biggest loving arms! He loves us, each and every one I can testify to this! I find myself having self worth again. Michelle exists again and it's all because I followed Christ like love and instead of giving I ended up receiving such wonderful Christ like love <3 Now because I have a much needed purpose on this earth and because I have something to give always (even if I am sick, in my P.J's, with no makeup) I am posting a quick snap shot. Keep moving forward in the depths of your storm. Cling to the arms of your heavenly father to guide the way and I promise you will never fail or become astray <3 lots of love!!-Chelle

"Each one of us is glorious"-taken from the song Glorious by David Archuleta.

Meet the Mormons!

Have you heard about the new documentary Meet the Mormons??? It is coming to a theater near you! yes you! This is a movie about well Mormons A.K.A The Church of Jesus Christ of Latter day Saints. You may also have hear the term or name LDS. THIS MOVIE IS IN NO WAY A FORM OF CONVERSION OR MENT FOR THAT USE, THERE WILL BE NO MISSIONARIES PRESENT*** The sole purpose of this is to give you a chance to see what Mormonism is all about...it is to show who we are and what we do and our beliefs... and how they fit in our life's. This presentation will have members from all over the world with different stories and life's. So if you are curious grab a friend... all if fails, and you don't like it... you will at least have comfort knowing the church will be making NO. ZIP.ZERO. profits from this film...ALL PROCEEDS WILL BE GOING TO A CHARITY!!! 100% OF THE PROCEED TO CHARITY! So, if this sparks your curiosity and you are able and feel like attending #meetthemormons comes out on October 10th. If you are a member and feel like going go! but it is in no way a 'have to' event! here is a link for more info!  http://meetthemormons.com/#show-trailer?cid=118  #meetthemormons.
P.S. On Facebook today I downloaded the song Glorious by #davidarchuleta today for FREE... he wrote this song for the film plus it is a beautiful song! So go to Meet the Mormons Facebook page if you want to know more about the song and the film!!
           I am feeling so much better (mentally) my body still is very unhappy and chronically ill but my cheer is back and I feel great! (and honestly can say it is 100% due to my faith in the Church A.K.A God and My savior, Jesus Christ! and the General Women's Meeting! I definitely am thankful for this upcoming General Conference! time to soak up some spiritual goodness and guidance :) I am a true believer we all each and every one of us have a purpose here on this earth! Yes, I am not perfect and life gets me down at times but with the knowledge of my Savior and loving Father in heaven, I can get through the bad...trials truly bring the biggest blessing and I am saying this from the very bottom of my heart...it is a knowledge I have gained in this life <3 Don't get discouraged. It will all work out whatever you are facing via illness or a dispute with a family member or friend, a bad day, ect... lots of love -Chelle

Dysautonomia Awarness Month!!

As I sit in IV Therapy I figured what better time to post this....(today is a rough one)
Today is October 1st. October is Dysautonomia Awareness Month. Something I hold near to my heart. I suffer from Dysautonomia. I have had Dysautonomia for roughly 8 years but due to this condition being very little know in the medical world... it took 8 years to find a proper diagnosis.(each year without a diagnosis dysautonomia worsens.) And still even with a diagnosis I am far from being well. Dysautonomia is MY reality. Dysautonomia is when the Autonomic Nervous System ...malfunctions causing all kind of different problems. For instance anything the body does automatically is controlled by the Autonomic Nervous system. so things like digesting food, heart rate, breathing those are all controlled by the autonomic nervous system. This neurological condition causes my body all sorts of havoc.. Dysautonomia is little known, some say it's rare but one thing i know is this Condition i live with everyday has little research, Very few doctors even know what this is, I can easily walk into any hospital or doctor's office and no one will know what dysautonomia is, it makes me wonder how many are suffering from such a very real awful disease and receiving no help. Could you imagine what it would be like to go to your doctor and him not knowing what you have wrong with you! That is why awareness is crucial for this disease! Doctors need to know! and better treatments need to be found for patients, so we can have better quality of life, besides doctors offices and hospital beds. We live everyday not knowing how and when... or really I should say how bad our symptoms will be. It's a surprise no one can predict. Cures need to be found! For more information or to donate, (there are a few different ways of awareness this year and supporting Dysautonomia, such as 'tying one on' (a very cute knot bracelet) http://www.dysautonomiafoundation.org/ -Chelle

Check it out....http://www.dysautonomiainternational.org/donate