White Turquoise Necklace

The picture does not do justice.

On our way home from all the doctors Saturday I got a beautiful White turquoise necklace! I seriously am in Love with it!! We found them on the side of the road at the bottom of the Salt River Canyon. They are there a lot of the time...(I travel wayyy to much to doctors hah) This is the 1st time we have stopped though. I am positive the best turquoise jewelry comes from those made by authentic Native Americans. -Chelle.

Medical Trip Update

I am home! Finally! My new Gastroenterology appointment went okay. I am getting a nasal Gtube possible Jtube. That will consist of putting a tube up my nose, down my throat, and into the stomach (for a g) and if it's a J tube same thing except it goes into the Jejunum. I am nervous about that! Then I had 3 biopsies taken (one on my wrist, thigh, & leg). That was for the neurologist to study my small fiber nerves in my skin. Then I had a MRI of my neck. Let me tell you it was one rough day on me. I truly did not think I was going to make it. I was sooo sick with POTS all day. Plus like maybe 2 hours of sleep the night before and barely sleeping all week thanks to my POTS. I did get some shut eye last night so thankful! but have had tummy troubles all day! if I eat more then 2 bites I am sooo sick. So the Total Parenteral Nutrition is going bye bye! It is very full of side effects so I am glad! I also think it will help my tummy to have something in it... hope it will start back up more.

Oxiclean

I am now a BIG fan of Oxiclean! I had the biggest fright last night with my Picc line...
I luckily was awake! I was sitting in bed at 2 A.M. frustrated I could not sleep. When all the sudden I was in a big pile of my own blood (and lipids)!  I knew automatically it was from my Picc line and I assessed the situation. I have a tube called a Y-site that looks like a letter Y. This is so I can hook up to lipids and TPN at the same time. (so 2 separate bags, and 2 separate tubes connect to the Y-site and that connects to my Picc line.) Well, my lipids came off the Y-site and where pumping all over my bed. But that is not the worst part in the few minutes I had been sitting there my blood was pumping out of my Picc line and let me telling you it was flying out! That is the scary part, I worry if I would of been asleep would I have bled to death? Maybe my insomnia is a blessing!! I definitely want my J/G tubes now! (by now I mean yesterday) Back to the story... I was bleeding all over and lipids were pumping all over. I hurriedly grabbed a washcloth and covered up the y site which made me laugh because I really needed to clamp it off to discontinue the bleeding and I was panicking so I tried to stop it with a wash cloth. It took me seconds to go oh yeah clamp.  I got my hands semi clean and luckily I have some wipes in my room too on my medical shelf. I went to town with those and started sopping up the blood with my washcloth and wipes and pulling off my bedding to toss in the wash. My new robe I just received for Christmas unfortunately also was drenched in blood! It is white with light purple zebra stripes. I was so sad looking at it all blood stained. but I got my bag and everything wipped up the best I could. Then I just tossed it all in the wash and I put a TON of Oxiclean in there with it and a tide pod. I am happy to announce my blood soaked sheets, pillows, and robe where all 100% stain free! Not a trace there! Yay! so I am an Oxiclean fan (and of course tide).  I am so blessed I was awake last night! Stay safe from those picc lines! xoxo- Chelle

411

So, this week has been an awful Gastroparesis week! Every time I eat anything I vomit, have bowel issues, and pain! I am starving. I am not sleeping. I see a new GI, have a small fiber nerve biopsy, and a neck MRI! I hope I survive that day. lol However ready to move forward -Chelle

I Don't Want To Forget My Pain.

               Some people say that the pain will all be worth it. That you will gain so much more. That you will grow strong from pain. That one day you will forget your pain..... I think pain allows us to appreciate things more. Sure, we grow from pain and in the end are stronger. But will we forget that pain? The pain that coils in-between ever fiber of our lives? I think not. I think that we remember. We remember it and the lessons behind it (pain). We think back and look at progress. We look back and see the lesson. The memory of pain is still there, that pain is still going to be there. Forever a part of our lives. Whether it is permanent pain A.K.A chronic, short-term pain A.K.A recovery/illness (like the flu), or emotional pain. Our minds are going to remember it. And in a big sense it sucks! However, whether the storm was short, years long, or life long. We weathered it. We fought it. WE did gain from it much more then we lost. I have gained something too large to ever price. My testimony that God is real. That Jesus Christ is our redeemer. both with endless love if we just come unto them and follow them. Before pain I did not know that. Pain and struggles brought me to God. Opened up my life for so much more meaning. My life has purpose. I wasn't just put on this earth to be here. I have a plan, eternal. I have a father in Heaven with endless love for me. And through that I can find peace. But the pain... I am not so sure I want to forget. -Chelle

Late Christmas Dainties

reindeer in the garbage...broken.

I had a sad moment Christmas day, when my only and favorite Christmas decoration broke! My reindeer Cookie Jar.... I barley hit it with it's lid & the glass shattered. Along with a piece of my heart. I have had that deer for many years you see... I got him at my LAST Hatch family Christmas party. (My Grandma's family) I had gone to those Christmas parties my whole life and as you get older those things tend to drift with your childhood. I have many good memories from those parties and the last time I attended I had no clue it would be my last. But it was and I have treasured that jar since. Rest in Peace reindeer jar <3

ON a brighter note...

SNOW ANGELS!!

The other night it snowed and I of course couldn't resist the urge to make an angel! Mr. Wrecker had fun in the snow too.

 

Don't mind my makeup stained/smeared face. I know it looks awful but I just wanted to snap a photo of my new favorite blanket my sister gave me for Christmas. In my theory no sick person can EVER have TOO many BLANKETS. It is IMPOSSIBLE. :)

Xoxo-Chelle



January 1st.

Today has been one for the bed. I just feel sluggish and off today. I even was pale most the day with dark circles around my eyes. I don't feel like I am sick with anything like a cold... Who knows with this crazy body of mine. On days like today I am so grateful for my pup Mr. Wrecker! He is just the right company! And as always loyal and taking good care of me. Love you Wreck!(like he is ever going to read this haha) xo-Chelle

Last night we got around hmmm 6 inches or more of snow! it is pretty! A good way to start off the new year. All of Arizona was covered in snow from this storm even the valley of the Sun!! Stay warm out!!