A Step at a Time

When you have a long bad day and you get a clean cut answer to a prayer. I've watched this video many times. http://www.mormonchannel.org/video/mormon-messages   But today it was clear as crystal. A different experience... A different day. A different me. I believe I acted on a twig of faith tonight and it grew. So simply, You listen. Get back up. And brush yourself off. Then try again with the savior on your side. Those moments are when you flourish in this life. -Chelle if you too are having a bad day remember it has been with the best if people who ever lived. They had tough life's too. You are never alone. Heavenly Father loves you so very much! Stay strong. Remember we can do hard things!! https://m.youtube.com/watch?v=kxCL1JdWuHE

Surgery update/info

I had my Endometriosis excision (removal) surgery bright and early today!

It went well and I am in the hospy for until tomorrow on observation with my Dysautonomia/POTS to avoid any complications that way. Today went well and I spent the afternoon munching crackers and falling asleep in between to wake up to crackers sitting on my chest! Haha. Now waiting hoping to fully get my pain in control. I did finally get up and "walk" I am not too shabby but hurting more I am sure it's because, 

I'm more awake now and night time is coming. (Everything hurts more in the night). They did find some Endometrosis and I also have microscopic Endometriosis. (We already knew from 2012) however my Surgeon talked to my parents after surgery because well you know anestesia and drugs! My uterus is now abnormal and she didn't know why but it has gone mushy and soft. They are suppose to be hard. I will know more at post op appointment. May be getting a hysterectomy. (It won't need to be soon soon it's not dangerous) *if I even choose to do it* but may be the reason for all my pain. I already made the decision to adopt my children after finding out my Dysautonomia/POTS would have a big chance of worsening with a pregnancy or right after a pregnancy. I don't just care about my boy so great health but with Gastroparesis I feel it would be a risk to my child as well. There are plenty of kids to love in this world and I wasn't always so sure of this decision (especially at 14yrs when this endometriosis showed its true colors) but with many prayers it is a decision God has put in my heart with great peace. Keep an eye out I will update as much as possible! Xo! -Chelle 

Packing chronic

This is what my hospital bag looks like all over my bed!

I have too much medical crap! I even have to bring it to the hospital to use that's how much medical garb I have!! Yikes! This is getting stressful and I am ready to have the next few days behind me! I just ate my stress and you can't do that with Gastroparesis!! A big No No! I learned quickly that I am going to be vomiting for the rest of the night. It's just been a few minutes and the bloat begins! (And the vomiting. I am using gastric decompression)   My tummy just hates food! Nerves get me everytime! Here is a photo of my now THREE pumps and THREE bags on the Iv pole! And of course a messy unmade bed. Sorry folks but I am not sorry I have a real life!

It's suppose to be a step forward but it takes a lot longer to hookup to all this!

Not included in the photo was my gastric tube being used so I had 4tubes at once! #tubielife. On the bright side, (literally) I painted my toe nails!

Which is a big effort and hard for me to accomplish for me these days. Between the unsteady shaky hands and the weird eye focus, and the dash of POTS and bending over for so long...(then the fact that no one sees them anymore with wearing compressions a lot.... Gotta have something pretty and sparkly to stare at all next week! lol I don't know if I have already mentioned my glitter story but every single time I have been upset or really sick causing anxiety (as you know my health has declined since May.) via not the best nutrition and daily migraines out of control and that bad virus. I am down 10  pounds. And I lost a full 6 months  of hard work getting muscle tone back to this deconditioned body. Now in a few days I have surgery and a recovery from that... I pray after recovery I can get back to recovering. (The neurological stand point) That one of the hardest facts is that I have Tubie issues and have bad nutrition times or I physically can't get out of bed. My POTS won't let me... The recovery for me is never ending. I am fighting daily to do simple tasks  that I never thought twice about in  "my old life" the story goes that every time my heart hurts pretty much I see a piece of glitter, either on me, on my hair? , or on something randomly in my site. Practically everytime I feel like crying. But it's there either way. I know I have a special angel sending me my Random sparkle to my days. (I don't have a bunch of glittery things I have a shirt that has glitter but it's gold and I have yet to find a gold shimmer of glitter. (At first I was like, "ooh pretty sparkles!" but then it was like, "where are these things coming from" They follow my to appointments all over the place?) within a few weeks I figure out that  Heaven is watching over me during hard times. I am lucky to be blessed with glitter lol  So with that being said I was sure to douse my toes in sparkles for good luck! Xo -Chelle 

Why would I ever use a wheelchair?

Why would I ever need a wheelchair vlog is up! Check it out link : https://youtu.be/UFg_nzMDqEc see you on the flip side! Xo! -Chelle                       Today is no needle in my chest day-break and I am loving it! Surgery is officially 1 week from today let the countdown begin! #Endometriosis 

Video 7/18/16 gift review

Last week I ordered myself a gift for my surgery next week! Gotta have some incentive right? Lol. Just kidding! I have started rewarding myself with a lil gift when I do something with my medical that is hard and I don't want to do it. I think a reward system is great and it helps make me feel better. So if your chronically ill make yourself a reward system. It doesn't need to be expensive or fancy just do what you can to add a little sunshine to your days! Xo!-Chelle     https://youtu.be/SulW5gLs1nI

Let's Help Our Sweet Baby Brooklynn

This link Holds Brooklynn's Story on her GoFundme page! https://www.gofundme.com/2evfdwc
This week has been a very hard week for a few family members of mine. As I am always posting of my life as Chronically ill, along with my faith of being chronically ill, and all those lessons in between. I have strong faith this baby girl is an amazing superstar of a soul already. My heart breaks though, tears have been shed knowing what hardships she is already and will  be facing in the future. No, I haven't been on life support or any of the trauma sweet Brooklynn has been through post my first few months in life as a preemie. I don't remember them. But I know how hard it is being sick a lot, seeking care, going through therapies, and the financial end of it too. I can't imagine the burdens she has surpassed this week all while wearing a tiara. But as I state the hardships... one thing I do know is Brooklynn MUST be one very special girl. She has shown her fierce side this week and her willingness to fight. (like a diva) I am proud little miss! You just keep up that strong fight and we will help with the rest! And if anything remember how much Our loving Heavenly Father loves you so very much  and you have a plan. And you have a huge family that loves you too! Even us crazy distant cousins. The journey won't be easy on you, you're Momma and Daddy (who love you so very much) and your siblings (may not always understand right now, but one day they will)... they might have bad moments with you, but that's because they care so very much for you. Love is a strong word and girl you are full of your family's love and care for you. I know with that you will be okay. You will also be blessed in so many ways that might not seem so obvious at first. How could this become anything good? I know. It is hard! But you will have moments of progress and You , Mom, Dad, Sister, and brother will be there cheering you on with excitements and giggles of gladness. You are a superstar Sweet  Pea and I have a strong faith that you will be okay! Rest, let us pray, send our love, offer help, and send our well wishes. But know we are here for you in one way or another. I won't stop praying. I won't ever quit. I care about your journey. You have one crazy distant cousin you haven't met but she is cheering you on!! Because she knows Brooklynn, Charnae, Ryan, Bentley, and Carter can all do this. You will come together to conquer. And Heavenly Father is in your life. How lucky you are little miss! You will never spend a day alone. Get mad, fight, cry, and become a toughie! It's hard but you will gain the knowledge of a life time and you are a sweet example to all of us! A little spark of inspiration in this world. I see it. You already are inspiring others. You have inspired me. I hope we meet soon! keep up that fight Honey Bunny! Sending you so much love and computer hugs- Chelle
IF you want to read Brooklynn's story here is her GoFund me page link...https://www.gofundme.com/2evfdwc Please donate if you can! This family could use the boost with a 3+month hospital stay and I am sure much more! They also have two other children. Let's send our support to them during this trialing time in their lives. Medical Bills are just an added worry they don't need right now. They need their energy for Their kiddos! Thank You!-Chelle

Stoma healing. More prayers please.

I am better and sleeping like a rock these days. I am pleased to announce the virus is mostly behind me! Plus I am not full of germs so I can use my treat organic lip balm again! (Do you hear the angels singing ahhhhh) so I am so thrilled about that little tiny aspect of life haha. I don't like my tube (as you've heard) and the bumper will not stay in place. Which is causing me pain and complications. So though, I fight to keep the bumper tight all day. (A bumper is on the outside of tube. Right at the stoma site. You want to keep it up against  your skin for healing and other wise your setting yourself up for granulation tissue. It also supports the tube and stabilizes the tube. I know I have granulation tissue inside. The pain is sharp and I bleed. The pain goes from my stoma up to my old scar in my esophagus... So my efforts have not left optimal healing. So I am taping now 24/7 and this tube is going to behave itself. Three times in 15 min my bumper has come loose. So I'll probably be adding tape to that sucker too! This is the real Tubie life ...I will be nagging my GI too! Want a new tube this one is broken or malfunctioning at the least! #thereallifeofatubie  ... I have a friend having Endometriosis surgery today we would appreciate prayers for her as we all know POTS and surgery don't mix well. Please continue praying for my cousins sweet baby girl she is in PICU on life support. Lots of healing and comfort prayers today! Weighs on a heart but makes us ponder how valuable life and health is. Sending me love to all! Thanks xo!-Chelle