Wednesday, January 22, 2014

A little bit about me...


All in a nut shell... I am almost 21 years old! I am not the average twenty year old however, I have been sick since age 14, it all started with an ovarian cyst that turned into me being in constant pain & an endometriosis diagnosis at age 15. following that I was not the normal teenager and suffered through with pain and feeling very ill most days. I did however choose to continue on varsity dance and ending my senior year on varsity cheer because, it was MY life and nothing was going to stop me (even though my body did some days and it was SO challenging) I had my heavenly father at my side through all of high school and my health challenges. Then I graduated and did online school (for college) and ended up being so incredibly sick my life stopped at a screeching hault and still has. almost 3 yrs later I continue in this battle. It has been a long three years...( this is what my past 3 years have been fulfilled with...) I have a diagnosis to my pelvic pain called (I still do have endometriosis) pelvic floor tension myalgia and I was so bad at diagnosis I was falling down and couldn't really stand or walk. I was categorized as someone who had their pelvis totally crushed in a roll over accident. BUT I WAS NOT in an accident my body did it to itself from living in daily intense pain. I had surgery at st joseph's advanced pelvic pain and gynecology by Dr Anita Desai. They are wonderful and know so so much more! I have been in physical therapy for one year and 7 months. I have at least that long left for a recovery but everyone is different. during this time I have been diagnosed with autoimmune diseases none of these are contagious* Lichen Planus, is a connective tissue disease(which basically feels like you are being burned with a curling iron or a hot pan when flared. You can get lichen planus pretty much all over too. In your mouth, skin, private parts, throat. I believe you can get it anywhere)  and Sjogren's Syndrome.( inflammation attacks moisture producing glands, so dry eyes, mouth and skin. Then your joints swell, you get extreme fatigue, brain fog and so much else.) Panic disorder panic attacks for no reason due to your adrenaline never turning off, I developed this from being ill. it will be cured one day:))  my autoimmune diseases will never go away.  I am currently still sick and having a hard time getting any final diagnoses, despite several specialist later and several different types of treatments. I have no new answers to being so sick.  I will continue to fight this battle. I truly believe the biggest trials in life are the BIGGEST BLESSINGS. That does not mean trials are a walk in the park I have good days and bad like everyone else but I feel I have to fight extra hard some days.  I am a member of the church of Jesus Christ of ladder day saints. I get through the bad because my father in heaven helps me continuously. He reminds me what really matters in life and I couldn't do it any other way. I feel like I am sick for a reason even though I do not know why. I may have challenges and things may not go the way I plan but I am very blessed and this is my story... I am learning to take things one day at a time  hence my blog Chelle's Hope, one day at a time. My life is a beautiful gift. (I hope to be cured 100% but this is my wonderful, crazy, insane journey)